Welcome our heroes back! For the sake of children carrying diseases and the supportive association l'Envol, Orphan Europe once again participated this June, 19th at "La Course des Héros".
Orphan Europe is once again really pleased to be present as a gold sponsor during the 9th International Cystinosis Congress Beyond Borders (ICC), organized by the Cystinosis Foundation USA from the 30th of June to the 3rd of July in Valencia, Spain.
Orphan Europe has always supported the development of information for patients and families.
A new book was created to support young children affected by Cystinosis .